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Rare Disease Day
A global awareness day for rare diseases. Some genetic conditions associated with autism, including Fragile X syndrome, Rett syndrome, Tuberous Sclerosis, and Angelman syndrome, are considered rare diseases with specific research and advocacy communities.
History
Rare Disease Day was created in 2008 and is coordinated by EURORDIS in partnership with national rare disease patient alliances. It is observed every year on February 28, or on February 29 in leap years, the rarest day of the year.
How to Participate
- →Learn about genetic conditions associated with autism
- →Support research into rare conditions that cause autism
- →Connect with syndrome-specific communities if your child has a genetic diagnosis
- →Advocate for rare disease research funding
- →Understand that autism itself is not rare, but some of its associated conditions are
RARE-DISEASEGENETICRESEARCHAWARENESS